Understanding and supporting caregiving for people with Alzheimer's and other dementias

The Challenge 

As the number of people living into their 80s and 90s grows, the number of people with Alzheimer’s and related dementia (ADRD) is expected to increase as well, since the risk of dementia increases with age. It’s important to better understand how to provide quality care to older adults with dementia and to support their informal caregivers—family members and friends.

As part of that effort, Westat will be interviewing several thousand of these informal caregivers for the National Study of Caregiving (NSOC), conducted by the Johns Hopkins University Bloomberg School of Public Health with a grant from the National Institute on Aging.

Our Solutions 

  • We will interview 3,000 family members and friends about the care they provide or have provided to participants in the National Health and Aging Trends Study (NHATS).
  • We will conduct about 2,000 follow-up 24-hour time diary interviews with caregivers actively providing care.
  • We also have a lead role in designing the survey and disseminating the data for researchers.

The Results 

  • The study will enhance the understanding of caregiving to older adults with ADRD.
  • The design of this study will allow for contrasts between caregivers to older adults with and without ADRD for a nationally representative sample of caregivers who help older adult NHATS participants.
  • Data from this study are expected to provide information about ways to enhance the quality of care for older adults with dementia and how best to expand supportive services for family caregivers.