What programs help those with autism and other developmental disabilities?

Challenge

Maternal and Child Health Bureau (MCHB) programs responding to the Autism Collaboration, Accountability, Research, Education, and Support (CARES) Act Initiative seek to help individuals with autism and other developmental disabilities (autism/DDs). The CARES Act Initiative aims to ensure that all individuals enjoy a full life from childhood to adulthood and thrive in systems that support their needs and promote dignity, independence, and community participation.

Solution

CARES awards assist in advancing research; improving the capacity of public health agencies to build and maintain coordinated systems of services for individuals with autism/DDs; and training the healthcare workforce to screen, refer, and provide services for children and youth with autism/DDs.

Westat conducted a multiyear evaluation to understand the net impact of these programs. Through analysis of secondary awardee data and primary data collected through surveys and in-depth interviews, Westat provided MCHB and its awardees with the information they needed to:

• Monitor ongoing investments in training, research, and systems of care innovations
• Assess the effectiveness of those investments in addressing the needs of people with autism/DDs
• Identify areas where continued improvements are needed

Results

Westat’s data collection, analyses, and reports provided MCHB with important, independent findings on the impacts of programs congressionally authorized under the Autism CARES Act. Comprehensive analysis findings identified effects on individuals with autism/DDs across the lifespan and program gaps, leading to improvements in programs that support the health needs and quality of life of individuals with autism/DDs.